frequently asked question

If you are eligible and desire to participate, you get started by clicking on the Take Me to the Questionnaire button you will find at the bottom of each page. The first task is to complete the Informed Consent section. Following that, you will choose to your confidentiality option at the start of the Demographic Section. The open-ended question section follows. That’s all there is to it!

Most participants spend 20 minutes (give or take) depending on the length of answers.  The Questionnaire is divided into three parts:

• Informed  Consent 
• Demographics 
• Open-Ended, Heart-of-the-Matter Questions 

I’m Carol Estrada, a doctoral student in Human Development at Fielding Graduate University.

 Click here to find out more about me.

On an individual level, you may find personal benefit through the process of reflecting upon the questions and the formulation of your responses. On a much broader level, other young adults with cancer who find themselves having to confront life-limiting cancer may benefit from your contribution. Loved ones, healthcare professionals, and caregivers all stand to gain from hearing your voice.

The risks to you are considered minimal, but there is a chance that you may experience some uncomfortable emotions as you recount your cancer journey and what the future holds for you. Conversations about your cancer experience can be difficult and emotionally volatile, but having the opportunity to ponder the survey questions can bring about clarification of your perspective, along with what you want and need as you move into the future.

Confidentiality is an option offered at the beginning of the demographic section of the Questionnaire (immediately following the Informed Consent section). You can choose to be known by your given name (no confidentiality) or to be identified by a pseudonym (complete confidentiality).

If you choose no confidentiality, you have the opportunity to upload a photo of yourself. A photo can help amplify your voice. 

First, check the requirements on the Eligibility page. 

Then, if you feel you are qualified, click on the Take Me to the Questionnaire box.